RESOURCES

Would you like help having a conversation that matters? These are just a few great resources we’ve found. Your suggestions welcome!

The Conversation Project

The Conversation Project is a national initiative with the goal to have every person’s end-of-life wishes both expressed and respected.

BJ Miller, MD

Watch his remarkable TED Talk: What Really Matters at the End of Life


Atul Gawande

Surgeon by day and public health journalist by night, Atul Gawande explores how doctors can dramatically improve their practice using something as simple as a checklist.


Gone from My Sight

Also known as “The Blue Book.” This was the first and remains the most widely used patient/family booklet on the signs of approaching death. The biggest fear of watching someone die is fear of the unknown; not knowing what dying will be like or when death will actually occur. The booklet explains simply, with no medical terminology, the normal process of dying and stages of approaching death from disease. Learn more here.


Dying to Know Day, August 8

Bringing to life conversations and community actions around death, dying, and bereavement. D2KDay promotes death literacy.

Five Wishes

A project by Aging with Dignity, a national non-profit organization with a mission to affirm and safeguard the human dignity of individuals as they age and to promote better care for those near the end of life.


Books of Interest

Extreme Measures: Finding a Better Path to the End of Life, by Jessica Nutik Zitter, MD

On Living, by Kerry Egan, hospice chaplain

Dates to Remember

May 6: US Nurses Day

May 12: International Nurses Day

August 8: Dying to Know

October 2-9: World Hospice Week

October 8: World Hospice Day

October 13:  New Friday 13th Opens Nationally

November: Hospice & Palliative Care Month

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A SECOND BIG THANKS to @HospChesapeake for holding a second screening of The Nurse with the Purple Hair last week!

Here's what several audience members had to say about the film:

"The second screening of The Nurse With The Purple Hair was well received by the audience. The film generated some good discussion. One woman said that she is planning to have a conversation with her children about her wishes and another woman said that she was present at her husband’s and both of her parents’ passings and knows she will experience more in the coming years, so she is trying to educate and prepare herself as much as possible. There was a consensus among the groupthat the film it opens up an important dialogue."
'--Meredith Pscherer,Advancement Coordinator, Hospice of the Chesapeake

“A wonderful movie to show the general public what hospice is and what people do for those who are dying. Hospice is a special work of love, compassion and caring.”
--Maria Christina Lidstone, Castlegar Hospice Society, Palliative Massage therapist

“Film was very heart felt and informative of the broad spectrum of what hospice care can mean -- both for people at the end stage of life and also for their care providers whether formal or informal. “
--Linda Krantz, RSW, Elderly Services Case Manager, Castlegar Mental Health & Substance Use

“As the founder of Castlegar Hospice Society in 1985, current board director, previous health authority caregiver, advocate for end of life planning and 87 year old going concern, my ongoing wish has been to demystify death and create an open and inclusive dialogue. The Nurse with the Purple Hair is a perfect way not only to showcase the incredible work done by all hospice workers but also to open up discussion. Well done!"
--Anne Fomenoff, Castlegar Hospice Society, Board of Directors
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BIG THANKS to the Connecticut Charter Oak Chapter of HPNA for hosting a dinner/fundraiser and a movie screening for The Nurse With The Purple Hair recently.

Here's what organizer Beth Henvy said: "The feedback from the crowd was that it was a powerful film that really gets at the heart of what Hospice workers do. Tears were definitely flowing and there was a lot of head nodding in agreement with the reality of hospice portrayed by the film. Our attendees were all affiliated with hospice in some capacity. They all felt this film was a valuable tool to help both the community and providers understand hospice and the importance of goals of care discussions and end of life planning."

We are so heartened our documentary can be used as a tool to raise funds while also raising awareness about the purpose, power and potential of hospice care! They apparently also had an awesome raffle!
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